About Us – SBCAN

About Us

We are a group of parents of children with spina bifida who wish to draw on our own experience, connections, and resources to improve the lives of other families in the Canadian spina bifida community. We’ve got your backs.

Alana Robertson

Alana Robertson

Member at Large

Biography
Our Story
Amanda Ridding

Amanda Ridding

Director, Medical Education

Biography
Our Story
Andrea Lesperance

Andrea Lesperance

Secretary

Biography
Our Story
Chris Geady

Chris Geady

Vice-President

Biography
Our Story
Jackie Wieczorek

Jackie Wieczorek

Member at Large

Biography
Katrina Keating

Katrina Keating

Treasurer

Biography
Our Story
Michelle Pritchard

Michelle Pritchard

Director, Communications

Biography
Our Story
Romeila Son

Romeila Son

President

Biography
Our Story

Vision, Mission, & Values



Vision

People with spina bifida can do anything. Because of us, children with spina bifida will grow up in a supportive, understanding, and accepting community. These brave and resilient kids will grow into strong and confident adults who will achieve their goals, chase their wildest dreams and explore all of life’s possibilities. We, as a spina bifida family, will foster an environment for greatness to happen for people with spina bifida all across Canada.



Mission & Purpose

  • We believe those living with SB CAN
  • We provide love and understanding
  • We are a safe space to ask questions and share experiences
  • We are a bridge to medical research
  • We are proud ambassadors for the community


Core Values

  • We are SB families, for SB families
  • We believe that anything is possible
  • We know life with spina bifida is beautiful
  • We are relationship-driven - open, frank, and supportive of all
  • We are positive, optimistic and forward-thinking – SB CAN!
  • We educate and improve Canadians’ perception of spina bifida
  • We are a family, here to support each other in good times and in bad